chugging along.
We’ve had a few appointments since I last wrote. We had an endocrinologist appointment and the day after that we met with genetics again. In the end, all arrows point to removing of the thyroid sooner than later. So before the age of 5. We are currently working with the endocrinologist for a surgical referral. It maybe done in town, or we may be going to Ann Arbor to go to U of M, but please know that our decision we make is going to be what is best for our family and it’s not a decision to be made lightly.
When we saw the endocrinologist after Christmas, he had blood work drawn on Ty. He assured me today that all of his blood work came back normal, so that is great news. It totally broke our hearts when we heard Ty say, “No more pokes!” to us as we were leaving the lab. It was his 2nd only poke ever for blood draw, but it is the start of many to come in his life – for the rest of his life.
So we’re taking it one step at a time and getting referrals lined up and writing down questions we want to ask and such. We have a lot of good friends and resources we can turn to, and we are very thankful for that. We already thank many of you already for thoughts and prayers as we chugga chug on our journey with Tyler. We’re proactive and we’re educating ourselves and keeping open minds and eyes and ears.
In the meantime, Chris just had a nasty bout of the flu over the past weekend. He pretty much quarantined himself in the bedroom for the weekend as I slept on the couch and disinfected and did laundry all weekend long. My stomach was really bothering me during Christmas time and the New Year, but then it passed, but now it’s all back again. Stomach hurts and aches and it’s just not happy fun. Hopefully this is just stress and this too, shall pass.
We had a lot of fun recently with cousins – either at Christmas time or at the Grand Rapids Children’s Museum or just about town. So we had some fun during the holidays and it was a great way to help keep our minds off the junky stuff we don’t need to be bogged down with.
I really just want my new hockey skates exchanged for a smaller size, and sharpened. I want to go skate and work off some stressful energy and get back into shape again!
